Document Type
Article
Language
eng
Publication Date
12-31-2019
Publisher
SAGE Publications
Source Publication
Journal of Transcultural Nursing
Source ISSN
1043-6596
Abstract
Introduction: Due to advances in disease management, mortality rates in children with sickle cell disease (SCD) have decreased. However, mortality rates for young adults (YA) increased, and understanding of social and psychological factors is critical. The aim of this study was to explore factors associated with health care transition experiences for YA with SCD.
Method: This was a qualitative descriptive study. A 45-minute semistructured interview was conducted with 13 YA (M = 21.5 years, SD = 1.73).
Results: Results suggest that social and psychological factors and self-management experiences influence health care transition. Eight themes emerged: “need for accessible support”; “early assistance with goal setting”; “incongruence among expectations, experiences, and preparation”; “spiritual distress”; “stigma”; “need for collaboration”; “appreciation for caring providers”; and “feeling isolated.”
Discussion: Consideration of cultural contexts will guide nurses in supporting health care transition. Designing culturally relevant interventions that address unique needs for YA living with SCD is warranted.
Recommended Citation
Clayton-Jones, Dora L.; Matthie, Nadine; Treadwell, Marsha; Field, Joshua; Mager, Amy; Sawdy, Rachel; Dalmida, Safiya George; Leonard, Cynthia; Koch, Kathryn L.; and Haglund, Kristin, "Social and Psychological Factors Associated with Health Care Transition for Young Adults Living with Sickle Cell Disease" (2019). College of Nursing Faculty Research and Publications. 638.
https://epublications.marquette.edu/nursing_fac/638
Comments
Accepted version. Journal of Transcultural Nursing, Vol. 32, No.6 (December 2019):5-86. DOI. © 2019 SAGE Publications. Used with permission.