Document Type
Article
Language
eng
Format of Original
7 p.
Publication Date
7-2016
Publisher
Elsevier
Source Publication
Journal of Pediatric Health Care
Source ISSN
0891-5245
Abstract
Introduction
The Institute of Medicine prioritizes active family and clinician participation in treatment decisions, known as shared decision making (SDM). In this article we report the decision-making experiences for parents of children who had a solid organ transplant.
Method
We performed a prospective longitudinal mixed methods study at five major U.S. children's medical centers. Qualitative interview data were obtained at 3 weeks, 3 months, and 6 months after hospital discharge following the child's transplant.
Results
Forty-eight parents participated in the study. Three themes were identified: (a) Parents expect to participate in SDM; (b) parents seek information to support their participation in SDM; and (c) attributes of providers' professional practice facilitates SDM. SDM was facilitated when providers were knowledgeable, transparent, approachable, accessible, dependable, and supportive.
Conclusions
Parents expect to participate in SDM with their transplant team. Health care providers can intentionally use the six key attributes to engage parents in SDM. The results provide a framework to consider enhancing SDM in other chronic illness populations.
Recommended Citation
Lerret, Stacee M.; Haglund, Kristin; and Johnson, Norah L., "Parents’ Perspectives on Shared Decision Making for Children With Solid Organ Transplants" (2016). College of Nursing Faculty Research and Publications. 434.
https://epublications.marquette.edu/nursing_fac/434
Comments
Accepted version. Journal of Pediatric Health Care, Vol. 30, No. 4 (July-August 2016): 374-380. DOI. © 2016 Elsevier. Used with permission.