Re-evaluating Standards of Human Subjects Protection for Sensitive Health Data in Social Media Networks
This study addresses ethical questions about conducting health science research using network data from social media platforms. We provide examples of ethically problematic areas related to participant consent, expectation of privacy, and social media networks. Further, to illustrate how researchers can maintain ethical integrity while leveraging social media networks, we describe a study that demonstrates the ability to use social media to identify individuals affected by cancer. We discuss best practices and ethical guidelines for studying social media network data, including data collection, analysis, and reporting.
Chu, Kar-Hai; Colditz, Jason; Sidani, Jaime; Zimmer, Michael; and Primack, Brian, "Re-evaluating Standards of Human Subjects Protection for Sensitive Health Data in Social Media Networks" (2021). Computer Science Faculty Research and Publications. 61.
Available for download on Monday, October 02, 2023
Accepted version. Social Networks, Vol. 67 (October 2021): 41-46. DOI. © 2021 Elsevier. Used with permission.