Format of Original
Western Journal of Nursing Research
Original Item ID
DOI: 10.1177/0193945915625065, PubMed Central: PMID: 26792855
This study purports to address paucity in the literature regarding how adolescents with sickle cell disease (SCD) describe and experience spirituality and religiosity (S/R). This was a qualitative descriptive study. Two semi-structured interviews were conducted with nine adolescents (Mage = 16.2 years). Data were analyzed using a template analysis style and a concurrent analysis process of data reduction. Three major themes encompassed the participants’ descriptions of the relationships between S/R, health and illness in their lives including S/R as sources for coping, influence of S/R beliefs on health and illness, and sharing S/R with Health Care Providers (HCPs). S/R as coping mechanisms included six threads: interconnecting with God, interconnecting with others, interconnecting with creative arts, scriptural metanarratives, transcendent experiences, and acceptance and finding meaning. Expectations of health providers included two threads: Religiosity is private/personal and sharing spiritual and religious beliefs is risky. S/R are particularly salient for adolescents with SCD.
Clayton-Jones, Dora L.; Haglund, Kristin; Belknap, Ruth; Schaefer, Jame; and Thompson, Alexis A., "Spirituality and Religiosity in Adolescents Living with Sickle Cell Disease" (2016). College of Nursing Faculty Research and Publications. 401.
Accepted version. Western Journal of Nursing Research, Vol. 38, No. 6 (June 2016): 686-703. DOI. © 2016 SAGE Publications. Used with permission.