Perspectives in Psychiatric Care
The purpose of this descriptive exploratory study is to understand the experience of being a caregiver of a person with autism spectrum disorder (ASD) in the light of the resilience theory.
Qualitative data were collected as a part of a larger quantitative study. Ninety-three caregivers completed this qualitative study and responded to the two open-ended questions. In the parent study, subjects were recruited by convenience sampling from the Interactive ASD Network (IAN).
The identified categories appeared to reflect three distinct categories consistent with the resilience theory, labeled as follows: risk factors, protective factors, and overlapping factors.
These findings help to inform the planning of tailored interventions to enhance caregivers’ resilience.
Bekhet, Abir K. and Matel-Anderson, Denise M., "Risk and Protective Factors in the Lives of Caregivers of Persons With Autism: Caregivers’ Perspectives" (2017). College of Nursing Faculty Research and Publications. 472.