Title

Parents’ Perspectives on Caring for Children after Solid Organ Transplant

Document Type

Article

Language

eng

Publication Date

7-2017

Publisher

Wiley

Source Publication

Journal for Specialists in Pediatric Nursing

Source ISSN

1539-0136

Abstract

Purpose

To explore parents’ experiences of the transition from hospital to home and complex chronic illness management following their children's solid organ transplant (SOT).

Design and Methods

Qualitative component of a larger mixed methods longitudinal study. Parents of SOT recipients were interviewed three times following hospital discharge from five major pediatric transplant hospitals in the United States.

Results

Analysis of parent interviews (N = 48) resulted in three themes that characterized the phases of transition to home and complex chronic illness care. Three themes, corresponding to the three time periods of data collection, included “getting back to normal” at 3 weeks, “becoming routine” at 3 months, and “facing a future” at 6 months. Challenges families experienced over the course of their transition are also described.

Practice Implications

The transition from hospital to home and complex chronic condition care is challenging and changes over time. Nurses are called upon to prepare parents to become knowledgeable and confident to care for the child after hospital discharge. Nurses can best support families in transition after SOT by anticipating and understanding their dynamic challenging complex care needs.

Comments

Journal for Specialists in Pediatric Nursing, Vol. 22, No. 3 (July 2017). DOI.

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