Document Type

Article

Language

eng

Format of Original

10 p.

Publication Date

2-2001

Publisher

Elsevier

Source Publication

Journal of Pediatric Nursing

Source ISSN

0882-5963

Original Item ID

doi: 10.1053/jpdn.2001.20548

Abstract

Families' experiences of providing long-term home care for the child who is technology dependent were explored via parental interviews. Families identified frequent change, uncertainty, and unpredictability in their lives, a phenomenon described as "living in a house of cards." Attempts to increase stability involved the use of vigilance, advocacy, and reframing. Areas of challenge, change, and growth included making sense of life, managing daily life with technology, and maintaining a functioning family. Increased understanding of family experiences with long-term childhood technology dependence can provide nurses with additional strategies for providing optimal care to this population.

Comments

Accepted version. Journal of Pediatric Nursing, Vol. 16, No. 1 (February 2001): 13-22. DOI. © 2001 Elsevier B.V. Used with permission.

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