Document Type
Article
Language
eng
Format of Original
10 p.
Publication Date
2-2001
Publisher
Elsevier
Source Publication
Journal of Pediatric Nursing
Source ISSN
0882-5963
Original Item ID
doi: 10.1053/jpdn.2001.20548
Abstract
Families' experiences of providing long-term home care for the child who is technology dependent were explored via parental interviews. Families identified frequent change, uncertainty, and unpredictability in their lives, a phenomenon described as "living in a house of cards." Attempts to increase stability involved the use of vigilance, advocacy, and reframing. Areas of challenge, change, and growth included making sense of life, managing daily life with technology, and maintaining a functioning family. Increased understanding of family experiences with long-term childhood technology dependence can provide nurses with additional strategies for providing optimal care to this population.
Recommended Citation
O'Brien, Maureen, "Living in a house of cards: Family experiences with long-term childhood technology dependence" (2001). College of Nursing Faculty Research and Publications. 100.
https://epublications.marquette.edu/nursing_fac/100
Comments
Accepted version. Journal of Pediatric Nursing, Vol. 16, No. 1 (February 2001): 13-22. DOI. © 2001 Elsevier B.V. Used with permission.