Pilot Study Protocol of a Mhealth Self‐Management Intervention for Family Members of Pediatric Transplant Recipients

Authors

Stacee M. Lerret, Medical College of WisconsinFollow
Rosemary White-Traut, Children's Hospital of WisconsinFollow
Barbara Medoff-Cooper, University of Pennsylvania
Pippa Simpson, Medical College of WisconsinFollow
Riddhiman Adib, Marquette University
Sheikh Iqbal Ahamed, Marquette UniversityFollow
Rachel Schiffman, University of Wisconsin - Milwaukee

Document Type

Article

Language

eng

Publication Date

4-2020

Publisher

Wiley

Source Publication

Research in Nursing & Health

Source ISSN

0160-6891

Abstract

Solid‐organ transplantation is the treatment of choice for end‐stage organ failure. Parents of pediatric transplant recipients who reported a lack of readiness for discharge had more difficulty coping and managing their child's medically complex care at home. In this paper, we describe the protocol for the pilot study of a mHealth intervention (myFAMI). The myFAMI intervention is based on the Individual and Family Self‐Management Theory and focuses on family self‐management of pediatric transplant recipients at home. The purpose of the pilot study is to test the feasibility of the myFAMI intervention with family members of pediatric transplant recipients and to test the preliminary efficacy on postdischarge coping through a randomized controlled trial. The sample will include 40 family units, 20 in each arm of the study, from three pediatric transplant centers in the United States. Results from this study may advance nursing science by providing insight for the use of mHealth to facilitate patient/family–nurse communication and family self‐management behaviors for family members of pediatric transplant recipients.

Comments

Accepted version. Research in Nursing & Health, Vol. 43, No. 2 (April 2020): 145-154. DOI. © 2020 Wiley. Used with permission.

Recommended Citation

Lerret, Stacee M.; White-Traut, Rosemary; Medoff-Cooper, Barbara; Simpson, Pippa; Adib, Riddhiman; Ahamed, Sheikh Iqbal; and Schiffman, Rachel, "Pilot Study Protocol of a Mhealth Self‐Management Intervention for Family Members of Pediatric Transplant Recipients" (2020). Computer Science Faculty Research and Publications. 30.
https://epublications.marquette.edu/comp_fac/30