Sickle Cell Virtual Support Group Program for Adults: An Implementation Evaluation

Authors

Dora L. Clayton-Jones, Marquette UniversityFollow
Lee Za Ong, Marquette UniversityFollow
Abir K. Bekhet, Marquette UniversityFollow
Weneaka D. Jones, Marquette UniversityFollow
Elodie Ontala, Community Participant
James Griffin, Community Participant
Ethlean Peacock, Community Participant
Kristin Haglund, Marquette UniversityFollow

Document Type

Article

Publication Date

2023

Publisher

Taylor & Francis

Source Publication

Issues in Mental Health Care Nursing

Source ISSN

0161-2840

Original Item ID

DOI: 10.1080/01612840.2023.2227266

Abstract

Sickle cell disease (SCD) is associated with medical and psychosocial challenges. SCD in adulthood is characterized by increased morbidity and mortality, vulnerability, inadequate self-management preparation, and limited social support. This study evaluated the implementation of a virtual support group during the COVID-19 pandemic using an intervention parameters framework evaluation. Participants included six adults living with SCD. Content analysis was conducted for each of the six intervention parameters, and satisfaction scores were summarized. Participants positively evaluated all intervention parameters of the virtual support group. Findings confirmed that a community-engaged intervention supports self-management and establishes key social networks for adult participants.

Comments

Accepted version. Issues in Mental Health Care Nursing, Vol. 44, No. 8 (2023): 758-766. DOI. © 2023 Taylor & Francis. Used with permission.

Recommended Citation

Clayton-Jones, Dora L.; Ong, Lee Za; Bekhet, Abir K.; Jones, Weneaka D.; Ontala, Elodie; Griffin, James; Peacock, Ethlean; and Haglund, Kristin, "Sickle Cell Virtual Support Group Program for Adults: An Implementation Evaluation" (2023). College of Nursing Faculty Research and Publications. 991.
https://epublications.marquette.edu/nursing_fac/991