Document Type

Article

Publication Date

3-2026

Publisher

WileyOxford University Press

Source Publication

Journal of Pediatric Psychology

Source ISSN

0146-8693

Abstract

Objective

Increasing numbers of caregivers in the United States face challenges caring for children with special health care needs. Research has identified unique challenges for caregivers, including limited resources and mental health issues. Caregiver burden involves various strains from the ongoing care of a loved one. This scoping review explored the emotional, financial, physical, and social dimensions of burden among caregivers of children with multiple conditions. It also examined study characteristics, measurement tools, and associations among constructs.

Method

A scoping review followed PRISMA-ScR guidelines using PubMed and PsycINFO for literature searches focused on caregiver burden and experiences.

Results

Eighteen studies met inclusion criteria with three categories emerging: studies on children with medical complexity (n = 3), varied pediatric conditions (n = 7), and specific conditions (n = 8). Significant associations between caregiver burden and the number of co-occurring conditions were noted overall, as well as differences in burden for caregivers of children with and without co-occurring conditions.

Conclusions

This review discusses the general findings, strengths, and limitations of the existing body of research. Future research should aim for more diverse samples and assess caregiver burden longitudinally. Pediatric psychologists should work to assess and reduce caregiver burden in families, especially for caregivers whose children have multiple diagnoses.

Comments

Accepted version. Journal of Pediatric Psychology, Vol. 51, No. 3 (March 2026): 269-280. DOI. © 2026 The Authors, published by Oxford University Press. Used with permission.

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